Sunday, September 11, 2016

Teaching John

It has been a while since my last blog entry and we have entered into a new phase of life with Down syndrome since then. Life seems to be a continuous period of adapting to life with Down syndrome as each day brings a different set of challenges. Each parent of a special needs child has to navigate the waters of raising a child with special needs the way they see fit, and each set of parents chooses to do it differently. Being both medical people who are familiar with Down syndrome, my wife and I chose from the beginning to fore go the states admonition of how to help and teach our son, and to personalize our help to John's needs.

John is now 8 years old and is in 1st grade which has brought many challenges. But we are facing them head on and with determination of giving John all the tools he needs in order to learn as much as he can. We know that there are limits to what he will be able to learn, but neither we or anyone else can tell us where those limits are...so we push, prod, tutor, read, play with marbles, raisins, count our peas, chicken nuggets, etc until we find the ceiling to his abilities.

Thus far, John has surprised us as to his abilities. Just as I have stated before on this blog - people usually rise to the challenge they are given. If people aren't challenged to move toward a goal, then they won't reach the goal, but if we set goals and challenge them to reach those goals, we are surprised at their achievements.

So we keep on challenging and loving him for who he is and we pray for him that the Lord would strengthen him and guide John. Because we know that God has a plan for John's life. 

Wednesday, June 25, 2014

Closing In On 6 Years Old

Life has gotten busy around here with jobs and teenage children and getting ready for college that blogging has been shifted to the bottom of the list. But to give an update to all who still look at this blog - John is doing well and continues to progress in his abilities.

He will be 6 years old at the end of July and as with any child, each stage of his life presents with a different challenge...just in different ways and not always age appropriate. Although, he is 6 years old, he is more on a 3 or 4 year old level for learning, communicating and ADL's (activities of daily living). 

He is going to preschool (non-special needs) and has been going to the same one for about 2 years now. He has made many friends there and he names them by name and gives them hugs and they give him hugs. They miss him when he is gone and really treat him like any other child there.He is expected to act and obey just as the others or else he gets put in time-out just like the others. And John has risen to the challenge and has learned that he doesn't like time-out and he knows that he needs to obey to avoid time-out. He can count to 5 and can recognize most of the ABC's, although you have to get his attention for this to happen...and this is a lot of the challenge. His attention span isn't very long, but it is getting better as we are working with him on staying on task.

His recent achievement is keeping his underwear dry all night. He has been wearing underwear during the day for about 9 months now but just recently asked to wear underwear at night, so we were willing to let him try it but told him he had to keep them dry. It has been about 2 weeks now without any accidents. And when he needs to go in the night, he will wake up and come tell us he needs to go potty. He won't go to sit on the toilet without asking us to help him, but that will come. I'm just glad and thankful that he is potty trained. 

Since he has not learned all of the ABC's or numbers, we have decided to hold him out of kindergarten and they will allow him to stay in preschool another year. We will be praying that he will be ready when he is 7, but if he's not, then we are not going to worry about it and do what is best for John. In the past 6 years, we have learned that John is on his own time schedule and his schedule or abilities cannot be sped up. This does not mean that we don't try and teach new things, but it does save us a lot of heartache from him not reaching the milestones at the age other children learn them. We have learned that he will reach that milestone eventually...and he has met every milestone thus far, just at a different speed. 

Thanks for reading this blog and John's story. We love to share his story and how the Lord has protected him and blessed this family by giving us John. It hasn't been easy and I don't think anyone with a special needs child will tell you that, but if you hang in there with them you will find that they are part of the blessing that our Heavenly Father wishes to bestow upon those of us that allow them to come into our lives. 

Sunday, October 20, 2013

Pictures of John


John is now 5 and is a very active little boy who is acting more like my other children every day. He is now 90% potty trained and loves playing with his friends at preschool and his brothers and sisters.

He loves playing in the dirt and mud and also loves working puzzles and reading books. I am amazed more everyday at how he is more like my other children than he is different.